Hi!
https://carers.org/about-caring/about-young-carers
Also ask disability social worker for a carers assessment of need. This can potentially unlock more support, short breaks and respite.
If in England, do you have an ECHP for your child? Again this can be utilised to get more support. Criteria for assessing simply may have Sen needs. More info on ipsea.org.uk
As mentioned above DLA.
You are probably eligible for Carers Allowance too.
Also look for local charities.