Parenting with disabilities

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  • #5495 Report

    Wolfma
    Participant

    Hi all!

    Looking for tips and hints for parents with disabilities! I am a mum of two under 1os.

    I myself have several issues such as asthma, joint hypermobility syndrome, scoliosis etc and also anxiety/depression.

    I find some days a real challenge either down to physical pain, fatigue or feeling low.

    A lot of days I manage the school run and to feed everyone but not much else!!

    I wondered what others do to manage?

    I have applied for PIP but was refused so don’t have any money for any home help.

    Any advice appreciated!

    #5645 Report

    Jf
    Participant

    Hi wolfma, i have difficulties that affect my day too, fibromyalgia,hypermobility,chronic pain,pelvic problems and aniexties and ptsd. I also have 3 kids with various disorders. Challenge is defianetly the word but i find what helps me is setting my expectations slightly diff from before, i do basic housework in parts through day,i always stop at 7, if it not done then it not getting done by this time. I pace the day with activities in short spurts of what i can achieve. I always have sun indoors with films, pjs and roast, shopping is nightmare so i always plan around friend to come with to do lifting n carrying etc.i think routines are good to keep motivated and bad day back up plans are important. Im not shy in asking a friend to come help with anything even if it to hoover once a week. I would try pip again and contact a disability charity to support you. Go the extra mile and appeal.try and take it easy onyourself as you still do a great job but just have a harder time to get there. I hope some of this helps. X

    #5668 Report

    Wolfma
    Participant

    Thank you Jf – very similar situation, my son has HSD also. I have been told by friends not to worry too much about the state of my house, but their houses are always less cluttered or nicer when I visit! I have tried really hard today to get some stuff done, but just end up in pain or feeling dizzy. So I am going to have to stop and rest even though I am in my stride or else I won’t make the school run. I trip over stuff in the house, or slip, but in terms of getting rid of stuff I always think of the fact I could sell them to pay off debt! I have a re referral to the hospital about the pain in my back/hip and have had my meds changed so hoping that will be enough to make PIP see I am serious. I really appreciate your opinion – thank you very much.

    #5683 Report

    Jf
    Participant

    I really get where your feeling, my friends houses always seem to be less cluttered and they accept mine as part of me but i do get envious and want my house sorted. I made attempts by inviting a friend at time for snacks and a drink and to help with one room they more than help to help and be useful. I also with items i knew could be sold just filled one box a week and handed to another friend who is a dab hand at selling online. My experience with pip is they now consider the help you do pro actively to maintain your daily living and exactly what help you need off another person to do these things. I hope you get the help you need as it feel so lonely and frustrating dealing with pain. X

Viewing 4 posts - 1 through 4 (of 4 total)

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