Beginning the asd assessment stage

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  • #58236 Report

    eleanormumof3
    Participant

    Hi everyone, im unsure where to post this questions, but was hoping someone more knowledgable could point me in the right direction. I’m a single mum of 3 kids aged 19,13 and 10. My 10yo son has always been loud and kind of hyperactive but I always though that was just his personality and nothing to be concerned about. Until last year and the covid lockdown caused his personality to change a bit more noticeably with increased agitation, boredom, disruptive behaviour etc. I asked for help with my GP surgery and fast forward to now and we have seen a nurse in CAHMS who suspects he’s on the spectrum. So I have been left with a fistful of phone numbers and emails that I have to make to arrange numerous appointments for him, and the return to school will bring meetings with SENCO and school staff. I am exhausted thinking about it all!
    may kost immediate concerns are how to manage his loudness, his increasing anger and aversion to social situations ? It’s like he is always more interested in being by my side all the time he’s awake and I have to try and manage but being clueless! I have downloaded a welsh gov document on autism and read through, but there weren’t many practical tips for everyday situations that I could greatly benefit from. Please if anyone can help with ideas for these intense moments I would really appreciate it! Thanks and sorry for the long first post!

    #58239 Report

    Vintagedresser
    Participant

    I went through this and I found that in our experience we had no help they just diagnosed and then left us all to deal with it. It’s not the same for everyone but all I can say is make sure you make time for you, on a plane they make you put the mask on first, so as in life. As long as you have head space for when things get tough, tea bags in the cupboard and you know how to put your foot down with these people if there not doing what their supposed to, you will be fine and so will your son. One more piece of advice…make separate time for the others a common problem in families where one needs a little extra help is the others get resentful and act out. Now you know what I’m gonna say to that don’t you….time for one on one  tea and a chat maybe a bit of cake. You will be OK ❤

    #58240 Report

    eleanormumof3
    Participant

    Thanks for the reply! It sounds bad to be diagnosed and then left to it?? Do they not get any help in school etc? I am googling to see if there are any strategies I can implement to help him at home. And yeah, I’m all for the tea and cake 🎂!

    #58244 Report

    si7160
    Participant

    I have two with ASD ( diagnosed via camhs ) one with traits of asd,

    I have some support but resources are tight home school partnership is the key

    you have to make your child a priority

    pm me if you are comfortable but happy to respond on this thread

     

     

     

    #58245 Report

    eleanormumof3
    Participant

    Hi! So two of you children then? Ok, I would like to message If  that’s still ok thanks

    #58247 Report

    si7160
    Participant

    of course

    #58248 Report

    Vintagedresser
    Participant

    I fund the school system for my son was not good but I couldn’t pull him out of school I had to work back then and to be fair go back to school…didn’t go so well the first time round. There are some good non main stream schools though and when I finally got him into one he thrived and didn’t get bullied. I don’t know if there are any James brindley schools where you are but I recommend.

    #58255 Report

    JBLA
    Participant

    Sorry to hear things have been tough, every child can present slightly differently or have different needs with these diversities, but noise cancelling headphones (for both if wanted!), & a bag of kids selected sensory stuff for self soothing can help sometimes.

    We’re you given links to support orgs? You should be able to expert advice & support from; National Autistic Society (autism.org.uk)

     

    #58256 Report

    JBLA
    Participant

    have heard great stuff about the national autism team in Cymru too, if it helps to have something more local;

    Home – Awtistiaeth Cymru | Autism Wales | National Autism Team

    – i think there are a few support orgs in Wales, who should be able to give you more practical support & some support groups for parents too! 🙂

    best of luck

    #58274 Report

    eleanormumof3
    Participant

    I will have a look at that welsh one now thanks a lot!

Viewing 10 posts - 1 through 10 (of 10 total)

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