Hi I live in London and am mummy to a little autistic girl. It’s a struggle going to speech therapy appointments, getying to work om time and dealing with household chores and I get very lonely at times. I have a sister and brother buy they are busy with their own lives.
I have sent off paperwork to.the council so that my daughter gets her special education support plan in place as she will start school.next year. it’s almost 2 years and we did not get an appointment to see an nhs paediatrician for diagnosis. I had to go privately in the end. I’ve worked all my life and have paid my taxes and my daughter was left to get on with it and suffering in silence.
I have a 16 year old daughter with autism. She is also a selective mute. It took me two years to get her EHCP and I also had to fight for her diognsis. I have recently challenged our nhs trust (North Yorks) as H needs a specelist speech and language therapist. They have now agreed to fund a privet S & L assessment and treatment. Sadly everything is a fight, which is draining when you work full time. Even thought H has an EHCP I still have to battle with school to provide what they should be.
You are just at the beginning of a long journey, being a single parent with children is hard enough but raising a child with a disability is doubly hard.
Please don’t hesitate to get in touch if you need a chat or any advice. If you haven’t already get in tough with your local SENDIASS they will be able to guild you through the EHCP process. Good luck, best wishes